Occupational Therapy with Children and Youth with Ehlers-Danlos Syndromes: An Exploratory Study
Principal Investigator: Dr. Sandra VanderKaay, PhD, OT Reg. (Ont.), Assistant Professor, Scientist, CanChild, Director of Clinical Education, School of Rehabilitation Science, McMaster University
Co-Investigators: Dr. Peter Rosenbaum, M.D., FRCP(C), DSc (HC), FRCPI Hon (Paed) RCPI and Dr. Marie Grandisson, erg., PhD
The purpose of the study is to investigate the current state of knowledge, attitudes and practice of occupational therapy with children and youth with Ehlers-Danlos Syndromes (EDS). Results of this study will generate evidence to inform knowledge development and dissemination, the development of practice resources and supports, and a larger-scale research program. Participation involves completing an online survey. The survey should take approximately 5 to 10 minutes to complete. Your participation is voluntary and you can withdraw at any time by not submitting the survey. Participants who are comfortable providing their email addresses will be entered into a draw for a $100 gift card. Please contact Sandra VanderKaay at
vandes22@mcmaster.ca with any questions.
Target audience for participation: Occupational therapists who are: (a) registered in a Canadian province, (b) actively practicing occupational therapy with children and youth up to 24 years old (i.e., paediatrics), (c) comfortable answering questions about knowledge, attitudes, and practices, (d) and English or French speaking.
Complete the survey.
Participation deadline: April 30, 2025